New research highlights significant gaps in paediatric palliative care services in New Zealand, with children facing inequitable and inadequate support. Currently, Starship Children’s Hospital in Auckland is the only provider of a publicly funded specialist paediatric palliative care service, and the service is small and vulnerable due to workforce pressures and a lack of additional funding.
Each year, about 350 children (aged 19 and under) die of serious illness in New Zealand, and a much larger group could benefit from specialist palliative care. International research suggests that with advanced medical technology, the number of children living with life-limiting conditions is expected to triple in the next decade. However, the workforce of trained paediatric palliative care professionals is insufficient to meet the growing need. As a result, many children and families are missing out on essential care, which has serious consequences for their well-being.
A report commissioned by the Ministry of Health in 2012 recommended the establishment of a nationwide service supported by Starship, with funded clinicans in each district. A group in Wellington has started a donation-funded paediatric palliative care service, but the researchers emphasize that a nationwide, publicly funded service is needed to ensure all children, including Māori, receive quality, compassionate care. They call for more investment in training and resources to build a workforce capable of meeting the demand.
Full story found here https://www.rnz.co.nz/news/national/533164/poor-care-for-dying-children-in-most-regions-report-shows
